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UCSF Brain Health Registry
Speeding up the discovery of treatments for Alzheimer’s.
Health disparities are common in the field of science, so it’s no surprise that the Brain Health Registry was faced with the obstacle of getting more participants from the Latino community. The goal of this study was two-fold. Firstly, we needed to enroll 10,000 members in the registry. Secondly, we needed to recruit 5,000 Latinos to volunteer in the Brain Health Registry study. Reaching, engaging, and building trust within this community were milestones that we not only achieved but exceeded.
To overcome this challenge, we collaborated with members of the Latino community and crafted authentic messaging that resonated with our audience. Our advertisements, email, social media, and grassroots campaigns allowed us to not only reach but exceed our goal of enrolling 10,000 members in the registry and we are en route to reaching our goal of recruiting 5,000 Latino participants to the study. In addition, the data we provided to our scientists allowed them to write academic articles to support further research that is needed in the field of brain health and the registry is being used for other studies. Moreover, we successfully engaged with the Latino community to spread awareness of the need for inclusion in brain health research. Moreover, we were able to tip the scales and include more underrepresented groups in the study of brain health.